Organizers
Alexandra Papoutsaki is an Assistant Professor of Computer Science at Pomona College. Her work on OHCs focuses on how patients organize to provide peer support and discuss psychiatric care in the context of mental health concerns. She is particularly interested in the consequences of offering advice outside the medical system and in creating collaborative solutions between OHCs and healthcare providers.
Jina Huh-Yoo is an Assistant Professor at Drexel University in the College of Computing and Informatics. She has been a PI of NSF and NIH funded projects in improving information quality of OHCs and designing and evaluating smart health systems for family health. She serves on the Steering Committee of ACM CSCW (2019-), on the Committee on Human Research at American Psychological Association (2020-2022), and on the Program Committees for ACM CHI, AMIA, IEEE/ACM CHASE, and EAI Pervasive Health conferences.
Haley MacLeod is a Research Manager in the Communities Product Group at Facebook. Her current research focuses on understanding how people express rich and multi-faceted identities online, including navigating tensions between privacy and expression in OHCs. Dr. MacLeod has also studied support seeking needs and practices of different chronic illness populations, including rare and genetic conditions, skeleton-muscular conditions, cancer, and mental health.
Lena Mamykina, PhD, is an Associate Professor in the Department of Biomedical Informatics at Columbia University. Dr. Mamykina’s broad research interests include an individual’s sensemaking and problem-solving in context of health management, collective sensemaking within online health support communities, clinical reasoning and decision-making, communication and coordination of work in clinical teams, and ways to support these practices with informatics interventions. Dr. Mamykina holds a BS in Computer Science and a PhD in Human-Centered Computing.
Andrew Miller is an Assistant Professor in the Human-Centered Computing Department in the School of Informatics and Computing at Indiana University-Purdue University Indianapolis (IUPUI). He studies how social computing technologies can empower people to help each other with their health and wellness. Dr. Miller has studied peer support for physical activity, OHCs for sensitive conditions, and online creative collaboration technologies. His current research focuses on family-based caregiving collaboration technologies in the children's hospital.
Svetlana ``Lana'' Yarosh is an Associate Professor in the Computer Science \& Engineering Department at University of Minnesota. Her research on OHCs has focused on understanding and enhancing the role of technology in facilitating social support. She has worked with OHCs focused on topics as diverse as cancer, substance use disorders, and early childhood parenting.
Daniel Epstein is an Assistant Professor in the Department of Informatics at the University of California, Irvine. His work examines the role of patient-generated health data in OHCs, particularly around mental health and healthy eating. In addition to understanding use of data in existing communities, he also designs communities and sharing mechanisms to support conversations around data.
